Vatican News
The Permanent Observer of the Holy See recalled that people with trisomy 21, „are more than a diagnosis” and „possess the same inherent dignity”.
Recognition of humanity is not limited to providing services
In his speech, the archbishop stated clearly: „their genetic identity does not make them ‘more’ or ‘less’ human”. Therefore, as he pointed out, „they should fully enjoy their rights and participate in every dimension of social life”. He also noted that true integration „is not merely about providing services, but about recognizing them as full members of the community”.
The hierarch also strongly addressed the threats of contemporary culture: „discriminatory and eugenic practices related to selective abortion must be firmly rejected”. At the same time, he recalled that a person needs not only professional care, but also „humanity and heartfelt concern”. Quoting Pope Leo XIV, he added: „the quality of life does not depend on achievements, but on love”.
Debate on rights and integration
The event, organized by the Jérôme Lejeune Foundation, brought together representatives of international organizations, experts, and people with Down syndrome. Two discussion panels were held, showcasing both the experience of life and specific social challenges.
The first panel, with the participation of people with Down syndrome themselves and their advocates, was testimonial in nature. The necessity of recognizing people with trisomy 21 as full members of the human family was emphasized. It was noted that the 20th anniversary of the UN Convention on the Rights of Persons with Disabilities is an opportunity to renew commitments to dignity and equality.
The second panel focused on systemic issues. Discussions covered the link between health problems and social isolation, the importance of early diagnosis and therapy, and the need to invest in healthcare. The role of the World Health Organization in promoting equal access to treatment and the need for greater acceptance of the birth of children with Down syndrome were also highlighted.
Jérôme Lejeune – French geneticist on the path to sainthood
The event was organized by the Jérôme Lejeune Foundation, named after the French geneticist who, in 1959, discovered the cause of Down syndrome: trisomy of chromosome 21. His research initiated the development of modern clinical genetics. Lejeune was not only an outstanding scientist but also a defender of life. He opposed the use of genetic testing for prenatal selection, emphasizing that his discovery was meant to serve treatment, not the elimination of the sick.
He was a close collaborator of St. John Paul II and the first president of the Pontifical Academy for Life. Today, the Church is conducting his beatification process. His legacy remains relevant: it reminds us that the true measure of humanity is the dignity of every person, not their ability or usefulness.
